Monday, December 24, 2012

I've made it!

Today marks 2 years of being bald. Its a bummer that it happened on Christmas Eve because it is now one of the hardest days in the year for me.
This has been the hardest thing I have ever gone through.
I try so hard to serve others to distract myself from my feelings.
It works.
But in the comfort of my own home,  I am truely hurting.
So,  I choose to ignore it.
And when I realize it, it hails.
Which usually takes me a few days to get over.





On a more positive note...

A few experiences that I was able to attend this year without hair are:
Meeting Tyler Blackburn from PLL, Letting him sign and kiss my head.
Going to Blue Man Group with my Uncle Jon, cousins, Awesome Albanians, and Mexicans!!! A blue man put his painty hand on my head and kissed it.
Meeting another Alopecian, makes it a bit easier to talk about the joys of this disease.
And seeing my blog on Pinterest
thats all.
Well happy 2 years.

Thank you to all who has helped me thus far.

Sunday, November 11, 2012

Thanks. giving.


Every year, around this time. I try my best to think of all the things I am grateful for, and write them down.
I don't know why, but this is one of the HARDEST things for me.
I try to find different ways that are easier and then I just fall back into the same pit. 
Here's the sad thing, I can find the greatest quotes and reminders and after about a day I just ignore that little post-it that is sitting right in front of my face, because I  already know what it says and I don't want to hear it.
So, I'm asking you. What do you do to stay positive?
Oh, Like this one..
I just love this
Does anyone else have a room they want me to decorate for cheap? 
Because doing crafts makes me happy.
Before.
After.

On a more positive note...
I met another Alopecian!!!
His name is Scott Edgeworth!



Also, I Stole this from a very inspiring blog, but I really like it.
"It is not easy, none of life challenges are, but at the end of the day I am the master of my ship and I CHOOSE to steer clear of choppy waters in hopes that one day maybe, just maybe when I wake up in the morning I won’t have to make the conscious choice… it will just be me again.

Wednesday, October 10, 2012

I don't know Rach...

Hi, It's me.
Moved to Laguna till Sunday, and I'm already missing the LBC.
Something about moving...
Its a love/hate relationship.
I just wanted to say thank you so much to everyone from the El Dorado ward and LBC for making me feel welcome for such a short time! And KEEP IN TOUCH!
I really can't tell you how much this part of moving kills me each time.
New Favorite song: Safe and Sound from the Hunger Games
I've decided to go on a mission :)
I am so excited!
I love writing missionaries
and I cant wait till I'm on the other side!
I move back to Las Vegas on Sunday.
I am excited to have my own room :) 
And to be back with my family! 
Not excited for the heat, 
but its starting to cool down!
I  am so so so excited for the
HOLIDAY SEASON!!!!!!
Honestly, the best time of the YEAR!!!
Oh and I don't know if my mom reads this but I am so excited for her to see how much hair I really do have :) I think between her and my sisters they always seem more excited about how much hair growth I have than I am :)
Maybe its beacuse I see it everyday. 
But honestly I really wish I had the skills to take a picture of these things!
Unfortunately I hate them more than I love them
simply 
because 
they look funny.
because they are on the middle of my head!!






Wednesday, September 26, 2012

Greys anatomy FRIDAY!

Are you ready for this?
I am so excited! 
I love love love Greys Anatomy!
And country music :)
It makes me smile.
and I get to go to this lovely place in 2 days.
Want to know more about it? Click here

Monday, September 24, 2012

Decision made!

I am VEGAS BOUND! 
Its bitter sweet. 
I want to say thank you to everyone who has helped me to grow and learn here.
I will miss being this close to the beach 
But I can come and visit anytime :)
I am excited to swim at my parents new house 
and hopefully get into cullinary school.
 Lots and lots of trips with Jess!
Here's a few pictures of what we've been doing around here!
Coolest parks ever!


This guy is always too cool for me...

 Never enough walks on the beach
Look at the view from up top :)


Saturday, September 22, 2012

ugh..

Who am I..
To tell you the truth I, am not really sure. 
Its quite depressing.
On a good day, I am confident. But even the smallest comment could ruin me for days.
Already has.
I really appreciate the people who tell me how they feel straight up, But some days I just can't handle the criticism.
What is natural beauty?
The only way to happiness?
Love?
Love what you do. Love who you are with. Love where you are.
And last of all the people you are with love you for who you truely are.
I know who I am.
 Lets start with the things I know in my heart to be true.
I will never be happy, if I am uncomfortable without hair.
I will never be happy, if anyone I am with is uncomfortable with me without hair.
I cannot take my hair off anywhere without a constant battle between my comfort and others.
I am sick of being one of those things that the people watchers watch. 
and say what is that. Or they tap the person next to them and say "hey! Look! its hard to miss."

I wish I knew one thing in my life, which direction am I going?
I feel like I am in "limbo"
I could go to Vegas or California.
Vegas. 
Free rent. No Car. No Job. Living with my family.
California.
No house. No Car. No Job. Skyping with Abi. Independant. Possibility of wasting the money I saved.




Tuesday, September 18, 2012

Turning Pages


I love...
-mormon messages.
-walks on the beach by myself.
-Turning page By Sleeping at Last
-Twilight movies
-Going to the temple every week
-Cute girls who want to try on my wig and we laugh, it makes me feel comfortable.
-When Steve plays the piano. And then he looks over with that smile and throws a little twist to the song. 
-That Greys Anatomy came back on last night and I can watch it on Hulu!
-This quote from a blog that gave me some inspiration."Not looking like a supermodel gives people the opportunity to know you personally, If they're willing to take that extra step they'll get to know the person you really are." - Lizzie Velasquez to hear her story Click here.

The thing that makes me a little sadder everyday...
-Knowing I have to move.  One day here is just one day closer to the day I have to move, and I'm not liking it. I feel like everytime I finally get out of my comfort zone and put some roots down, I have to pick up and move. I love moving and meeting new people but I have a difficult time leaving. My ward has been so great to me here. I am going to have the hardest time leaving them! They took me in and treated me as their younger sister. It has been so great to live here. Life is good.

Saturday, September 15, 2012

My story


Just found something i typed up awhile ago...
On December 24, 2010 the only life I new was starting to change. As I took a shower that morning my hair started falling out, while i was washing my hair. Huge clumps would drop on the wet floor of the shower. The drain started clogging, my heart dropped, its coming, the day i have been worried about for my whole life. I cried. 
I welcome you to read a part of my life, with warning. The feelings I have felt while in this process aren't the easiest to read. 
Going back to school was the first step. What were people going to think about me? I had very short thin hair when I left for winter break, now i'm wearing hats with bangs. Hats are not allowed on campus. I only had a little bit of hair left on my head with an exception of the bangs, that were so kind to stay until i was comfortable, or just fed up with slowly watching my hair fall out. The hardest thing was the process, waking up in the morning, this wasn't a dream, my hair was falling out, there is no cure, and if i didn't have cancer, i'd be ok. It wasn't that big of a deal. I'm not dying. We shaved off the bangs and went wig shopping. I try not to remember what happened during all of this. I have found its better for me to express myself. Wearing the wig was itchy and uncomfortable. People didn't know me. They didn't know what i had been through and if they did no one would ever understand. 
Attention comes and goes in spirts. It helps with the grieving to tell my story, to ones who listen. 
I've always wanted to be accepted. For who i am. Who am i? For some reason, acceptance for the way i am is never good enough. This one person in my life is always trying to make me better. Why can't i just be myself? 
No two people are exactly the same. However, i feel that i have a clone. Although we are of different gender, we are the same. This bothers me. My trials are different than his. 
I am so grateful for the sweet guys that have liked me with or without hair. I feel like i am not worth their time, therefore i ignore them and our relationship ends. I feel that i shouldn't be liked. Boys shouldn't like girls who look like boys. This has always been my excuse. Boys have to like bald girls for who they are, but if i don't know who i am how do they know who i am? How can they like a girl who nobody knows who she really is?  
old friends, they DON'T know me. They don't know the person i have become. I am not who i was. I am uncomfortable everyday when i don't wear hair, when i do wear it, I can't be myself, I can't be who i was. 

Not much has changed since I wrote this. I am getting better at looking people in the eyes when I talk to them. I feel like if you look me in the eyes you see a different part of me, and I see a different part of you. For awhile I was ok being bald but I dont really know what I am. I feel like no one could or will ever be able to love me unless they love me without hair first.. I don't want comments. I just need to get it off my chest. Today was an "okay" day.

Wednesday, September 12, 2012

Love is all you need!

Love. Love. LOVE this.
I am going to attempt eyelash extensions... I'll post before and after pictures :)
A few good songs you should listen to if you were bored: Dream; Priscilla Ahn, Cry; Alexx Calise, and
       A Thousand Years by Christina Perri.
I love it here. Dating is the best! Walks on the beach, Sunsets, Walks on other beaches... Its just great!

Somethings that I love. Love. LOVE. are...
Skyping with this Linda sister of mine! And the cutest niece ever! And Davids feet. and occasional face  :)
Walks on the beach
The Smith family...and our family friends :)
Watching Bunheads, Bachelor Pad... Just ended! Thats ok Greys Anatomy!!! And PLL!!!
Oh how I love Taylor Swift!
Listening to music so so so loud in my car!
My Ward! and Wardy friends!
All the women that act like my mom or older sisters because they care!
My family... I miss them.
That I was given this chance to explore life and be independant!

I am livin the life but I do miss alot...
My friends, I miss catching up with them on a weekly basis. I always wonder what they are doing and how things are going. But I never have the time to just sit and talk or skype with them for a half hour.
I never thought I'd be saying this but I miss school, mostly the teachers that were so great to me this past year and some of my friends that I only saw at school.
Most of all my family. I miss having Sundays to spend all together and enjoying each others company.



Wednesday, August 22, 2012

Kinda weird, and not really funny, but it was to me!


I thought you would like to know....  I am getting some little hairs! I hate being on these hormones.... They make me crazy! I mean more than I already am. I dont have much of an appetite.. and that, makes me mad. They taste horrible. And the hair... Well I'm over caring about whether I have it or not, except when I see hair styles that I cant do or when I am meeting new people who have yet to see the hairless side of me. Now I am going to share a little story.... I moved to California 8 weeks ago, and I am currently attending a singles ward. Well that was easy! Okay so I've met some people and most of them know that I dont have hair but they've never seen it. Except for one person. I showed him. ON A DATE! The FIRST ONE! WHAT IS WRONG WITH ME??? Its the hormones haha. Okay thats all. :)

Thursday, April 19, 2012

Monday, April 16, 2012

Count your blessings

It is often hard to look at your trials and not be drawn to the negatives.  I always tell myself, however, “Enjoy more fully, the sunlight.” -President Hinckley. 
....and that is all I needed for today. 
Sincerely,
         me.

Monday, April 9, 2012

Grateful.

The sun was shining today. Brighter. Hotter. As the sun went down the night was calm. I couldn't help but to see the Lord's hand in this day, Monday April 9th, first day back from spring break. Most, including me, in some state of withdrawl, depression, or both. But as I looked toward that soon to be miserable hot sun, I thought. The Lord is my comforter, and my comforter is not cold. A warm feeling came over me as I felt the need to brighten others gloomy day and let them see the sun as I did. So I did, the tears of gratitude that I had recieved were more than I could ask for. I'm grateful for this day, and the experience I had recieved.
Also, while at the elementry school while picking up ken ken, a little girl who seemed to be the age of 5 or 6 made it a point to say "hi" to me and wave with the biggest smile on her face as her mom pulled her along. 2nd Highlight of my day.
Stephanie Nielson said "We may look different but we can still love and be loved"

Tuesday, January 31, 2012

I"m Alive! ;)
I started treatments with a new doctor here in town!
and they seem to be working!!!!
I have a few pricklies on my head
2 eyebrow hairs that I can see,
and some mini eyelashes!
But only I can see them, which worries me.
it makes me think that I am imagining that they are existent.
oh well.
we'll see as time passes.
check out my Alopecia blog at:
Linda and I both got a new camera for Christmas/ birthday.
So Miss Linda had some fun with my clean face!
And I'm sure she would love for you to see the pictures she took!
[<3]
Abi, my niece has been keeping me very entertained!
I love her so much, it's amazing to see how much she's grown up over 1 year!!


She walks
talks
signs a few things in ASL
and dances :)
(video to come later)
I'm so grateful for the opportunity I've had to babysit her!
[<3]
Ali got married!
We had an amazing time with all of the family!
and the wedding was beautiful!
I love my family!